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Terminally ill British baby, family granted USA visa for medical treatment

Terminally ill British baby, family granted USA visa for medical treatment

Dr. Michio Hirano of Columbia University Medical Center in NY administered their first trial, along with other doctors at Johns Hopkins Hospital.

His parents, Chris Gard and Connie Yates, have been fighting to keep their child alive. He went at it with them for five hours, insisting there's a 10 percent likelihood it'll reduce the child's muscle weakness.

She added: 'Our gorgeous baby boy is still stable. "We are not bad parents, we are there for him all the time, we are completely devoted to him and he's not in pain and suffering, and I promise everyone I would not sit there and watch my son in pain and suffering, I couldn't do it".

The mother of terminally ill baby Charlie Gard is preparing for a meeting which could decide the little boy's future.

It has never been tested on any human or animal. The attorney for the parents, Grant Armstrong, says "the evidence "renders unsafe" the court's previous finding of futility with respect to Charlie's improvement chances".

But he was unable to persuade the London hospital's clinical team who believe it is kinder to turn off 11-month old Charlie's life support.

He had an MRI scan and an electroencephalogram (EEG) to monitor brain activity for more than 30 minutes.

The meeting on Tuesday is being attended by the team now caring for Charlie, including a consultant paediatric intensivist, a consultant paediatric neurologist, a consultant in paediatric metabolic medicine, and a consultant neuroradiologist. They said in a statement last week that the bill follows New York-Presbyterian Hospital and Columbia University Irving Medical Center in offering experimental therapy for the child, pending emergency FDA approval for the treatment developed by Dr. Michio Hirano of Columbia University called nucleoside bypass therapy.

Charlie's parents said they were "so grateful to Dr Hirano and the other clinicians for coming to see Charlie".

Results of the tests and evaluations have not been released and more tests are scheduled.

In April, the High Court ruled that Charlie should be allowed to "die with dignity". That hearing, and a subsequent hearing last Thursday, was characterized by emotional outbursts on the part of the parents: Last Monday, Gard's father shouted to GOSH's lawyers, "When are you going to start telling the truth?"

The judge is due to stage further hearings this week and said he will make his decision on 25 July. The increased attention Charlie's battle has attracted in the USA may have already been a factor in getting Charlie the help that he needs. His condition means his lungs are too weak to function by themselves.

The High Court has said it would be kindest to let him "slip away". United Kingdom courts and the European Court of Human Rights initially supported hospital officials.

Remarks by worldwide figure including US President Donald Trump and Pope Francis have put the spotlight on the ethical debate.

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